chronic illness

Surgery Success

Today was the day my lipomas were removed, but it wasn’t an easy journey to get here.

I have been sick for the last week and yesterday it became worse. I haven’t been able to do anything; photography, blogging, nothing but sleep.

The closest thing to the outdoors has been my porch. This is a new addition that we just got in September of 2017. Mothers Day my family bought me two hanging baskets. That’s also the day when my allergies kicked in, making the cold I had already worse, then triggering a horrible flare. We almost had to call the surgery off. So the fact that I am feeling better right after surgery is a good sign of the success of removing four lipomas. They originals thought I had two but I had two others deeper into the muscle…..hmmm…..no wonder why I have been having so much back pain.

I also received news that I will be having two other procedures simultaneously June 1st; a hydrodistention for my interstitial cystitis and a removal of possible endometriosis. This will make my fourth hydrodistension and my eighth laparoscopy for endometriosis. I may have those numbers wrong because of I honestly am not completely sure if that is correct. This is also very overwhelming for me and stressful. My husband is still having to stay home to help me because it will still be a while until I am fully healed from all these procedures I have had the last six months. But I also know that God is good and there is a reason for anything and I know this by personal experience. Staying in Gods word and talking with him on a daily bases has been the key, and because of this, he blesses us in return.

“A faithful man will abound with blessings, But he who hastens to be rich will not go unpunished.” -Proverbs‬ ‭28:20‬ ‭NKJV‬‬

So incredibly thankful for this essential oil blend. This last month and a half has been a hard one with lots of emotions, and this bottle has helped balance them. Getting older as a woman is hard, and this will be your best friend for many years.

So now it is time to rest, and get some schoolwork done. Thank you all for the prayers and remember, stay strong through achieved trials God has given you.

My Adventures, Uncategorized

Better Day.

What a wonderful after being extremely sick for the last three weeks. Today was my husbands birthday so we enjoyed the sunshine at one of our favorite towns. Felt so good to get out and about. Doesn’t that quinoa bowl look amazing! I brought half of it home for dinner.

About a week ago I decided to go gluten free and it’s already shown a huge difference, and most of my clothes are extremely loose. I guess I have a excuse to go shopping for new clothes. Hubby actually insisted on a beautiful black dress that was on clearance and a necklace he thought was perfect for me. I am excited to wear it for Mother’s Day and the ladies tea at church.

Like I said, the last the last three weeks have been rough. The first two was a fibromyalgia flare, followed by four days of sore muscles, nausea and migraines, and all the sudden I was just tired and yesterday everything happened at once. I finally went to the doctor and they thought I maybe had diverticulitis but thankfully I didn’t. It’s been rough and at nights it’s the worse, and I feel like giving up, but having my husband next to me every night and comforting me and lifting me up in Christ, I know that I must give this trial to God because he knows my future.

My family has been my rock. We spend all of our time together when the girls aren’t in school, which may change next school year depending if the girls want to be homeschooled or not; right now it’s up to them and based on my health and what God wants us to do. We have our little spits and arguments but we always come back together. Family is extremely important to my husband and I because we never had a strong family growing up. So far, I have literally everything I ever dreamed of.

Even though I struggle through my chronic illnesses, I know I must pick myself up and continue. Through prayer, I am able to bring myself together and move on. It’s never been that way, and it has meant I have had to give up many things that were of the world, but it’s been worth it.

Through the blood of Jesus Christ all my sins have been washed away, and because of that I am free and wish this upon everyone. I have fallen rock bottom many times but God picks me up when before I relied on other people or myself which made it even harder. God is the answer. Better is one day in his courts, as the worship song says.

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Holding On

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The last few weeks as I stated a few days ago have been rough for me. Not only did I go through a two week fibromyalgia flare, but after it ended I then had to go through the aftermath of sore and twitching muscles and fatigue. It’s been like this for many years.

I used to not do very well when I went through a long flare like this, but this time was different and it’s only by the grace of God that I was able to hold on.

May is going to be a month of “who knows”. Many appointments and procedures, but I am ready. God has a plan for me, and I am already being led down the path, I just have to hold on. I am going through these medical trials to shine the light for others, and I know that is what I have been called to do. It’s not always easy, but I can say with all certainty that it’s worth it and makes us stronger, but only if we stay in prayer and the word. I have been doing daily devotionals and reading through the Bible every day. I keep a prayer journal just because I have found it easier for me to pray while I write. Whatever works for you. Just give all your burdens and struggles to God, and you will be led and these trials will become easier to go through because you aren’t doing it alone.

I spent way to many years trying to figure out my health on my own, and that was a mistake. I had more stress and fell into a deep depression, but this last flare I found joy and became more thankful for what was given to me and my eyes were opened to just how blessed I was. Pretty clear that if we accept Jesus as our Savior and give our lives to Him, happiness becomes more evident.

So today when I went to church, I was reminded by how much we are loved and if we give our lives to Jesus Christ, we are new and cleansed, and will be carried through our trials. Plus, my church family is always there for me.

You don’t have to go through these trials alone. Give them to Jesus Christ and live your life for Him, and He will lead you and carry you through. He has with me and is continuing.

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Another Rollercoaster

Today I had my follow-up for my spine injections. I had my second injection just about three weeks ago and the relief was none. My doctor is now sending me to a neurosurgeon for an opinion as to what the next path of treatment will be.

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Yay! (😒) Just another specialist to add to my crazy list of doctors who are part of my chronic illness journey. Friday I see the general surgeon for the lipomas on my back, so that should be interesting. Meanwhile while waiting for my doctor to come into my exam room, my gynecologist who specializes in over half of my invisible illness gave me the news that I have a bladder infection inside of my bladder that’s diseased with interstitial cystitis, which explains why I am having horrible pain around my pelvic area. Oh! And I am still waiting on rheumatology.

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Truth be told, I’m scared. My pain is an eight and goes up to a ten at night. All of my body had been in some sort of flare for five days now. My degenerative disc disease and bluffed discs at L4/S1 are is creating my left leg to go dead and pain in my left hip, that is flaring up my pelvic floor myalgia, the bladder is flared from the infection, and all of those flared up my fibromyalgia. Yesterday I slept all day and couldn’t even leave my bed. So yeah, I’m all sorts of flares! img_3201

Life isn’t easy. The trials we face are of all different sorts which teach us lessons as we go through the journey. When my journey all started ten years ago and they kept telling me that I needed to see multiple specialists, I would immediately go into a panic attack, but today I didn’t. Today was different and there was just one reason why: my relationship with God. Plus the fact my husband is with me, that always helps. img_3239

The closer I have become to God the easier my life has become, but that doesn’t just come freely. It’s a relationship, a continuous and faithful one at that. That’s what gives me this freedom. As relationships with others consist of mutual love and respect, it is the same with our relationship with God. If we expect something from God yet don’t give him what He has clearly written in God’s Word (trust, faith in Him, the list goes on), that’s not truly a relationship with Him. Do you constantly ask your friends or spouse to do something and when they ask of something of you, you completely ignore it? Is that a relationship? Nope.

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Because I have been listening to Gods Word and trusting what it says and Him in general, I have been able to get through my trials and this journey much better. It has also opened many doors for me and our family in ways I can’t even imagine. Sure, I’m being sent to yet another specialist and am not healed or even close to it, but I trust His plan because He is the maker of me and my future. I have no right to intervene with our maker, and He knows what’s best for me. I used to fight and try to solve issues by my own ways, and it would just cause me further pain, both emotionally and physically. But once I gave my trust unto God, I have peace because when I pray, and I mean truly pray and have a full conversation with God, and after learning how to discern His voice, I know everything will be ok and He is using these trials to help others and to show me where He wants to use me in this world.

One learns the deepest meaning of faith during the biggest trials of their lives. Sure, this is going to be a new and crazy rollercoaster ride because of the new specialists being added, but I’m ready. I am chronically faithful and forever will be because my future has already been written and He is showing me a little at a time.

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Twitter: the Attack against Christians and God

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Recently my husband and I have constantly been asked why God doesn’t stop Satan from doing evil, or why God doesn’t heal everyone; basically why God doesn’t intervene during something that is considered bad. Little did I know it would just end up an attack on my faith. I’m not expert, but I do have God’s Word.

After I left Facebook, which was thankfully before the whole scandal happened, Rick and I decided we would give a try to Twitter, not knowing just how hate filled it was towards Christians, but the Bible clearly states that we should not be ashamed and to be disciples unto Him. Having chronic illnesses, that usually mean me being in bed all day when my girls are at school, what better place to share God’s Word on Twitter, and that’s how this blog post came to being.

When the original question was brought up, I immediately shared Romans 9:22 which gives what I think is a pretty clear picture. We can’t answer to all the bad, except that due to the fact God has given us the free will to accept Jesus Christ as our Personal Savior or not, many of this world is following Satan’s path and not the one of God.

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My personal examples are as follows: I personally have multiple chronic illnesses and am still battling them. I am unable to do what I used to and have lost count of procedures. God hasn’t healed me, but what I have learned throughout this decade of fighting my illnesses is that this was God’s way to bring me where He wants me, which is closer to Him and trusting Him in everything. I have gone through so many trials when I was wondering in the darkness, and He allowed bad things to happen to me. It was a wake- up call for me. Yes, I am not healed, and many would say that this is not love from God, and I say it is; like a father raises up his daughter or son. We must learn what it’s like without Him to truly understand how much we need Him. My oldest daughter was born with a severe birth defect called a Congenital Diaphragmatic Hernia. She had basically died 3 times, and we prayed so much while in the NICU, and during the times she would crash, we prayed even harder and had mass texts sent to 400 people. She revived. She is now healthy, but is borderline deaf and has some other medical issues, but she know’s God is real and has had her own personal experiences with Him, as of I. God IS real.

And then this is what I get from those on Twitter as I share my faith.

We are called to disciple, and yes, when we are attacked especially on our faith, it’s easy to shut down and surrender to Satan, but how else do we plant the mustard seeds throughout the world? How else will anyone hear the good news that God gives, even though many unbelievers will use scripture to tear you down. As Christians, and especially stay in God’s Word, we know the truth. In Hebrews 4:12 it says “For the word of God is living and powerful, and sharper than any two edged sword, piercing even to the division of soul and spirit, and of joints and marrow, and is a discerner of thoughts and intents of the heart.” Use God’s Word in battle of the spirits.

Even though I am being attacked on social media for my faith, I won’t back down and I WILL continue to use God’s Word for the greater good. Right now we must stand up for God more than ever. Raise up our children for Him, stay in His Word daily and in prayer, and we can do anything, through Christ Jesus.

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Beautiful Spring Day

Today I was able to venture out of the house with my family and the dogs. We went to our family property, which is where I have always gone when I need to just clear my head or get some real country fresh air. The family property has been around since I was young, and I am so thankful I can share it with my family now.

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As we started to drive down to the property, it started to rain, and hard, but by the time we made it there, it stopped and the sun came out just in time. It was like God was showing me that everything was going to be okay.

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I have been a bit worried about my doctor appointment coming up on Tuesday. I have gone through now two sets of hip shots and no relief, and after my husband reminded me that the doctor said if the shots don’t work I would need to have the procedure to remove to matter in my spine, I instantly became nauseous. I have lost track of how many procedures I have had between all of my illnesses, and to have them remove the nasty matter caused by my degenerative disc disease and herniated discs, just makes me feel extremely uneasy. I’m a outdoorsy girl and always have been, so if this procedure is God’s will and will get me back in the wilderness in the future (mountains, not the family property), then so be it.

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I walked around the property and just prayed. Prayed that God would bless the land and that any negative and evil spirits would be removed in the name of Jesus Christ. I prayed that God would show me His plans for me and ease my nerves. He did just that, and I caught some beautiful pictures, which I felt was God telling me “You are doing it. You’re listening to Me. Continue.” I’m on the right path, and it’s been much more gentle and joyous because He is the one leading me.

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As for the surgery, not sure what the future holds, but it doesn’t matter, because God is already there and already has it planned out for me. I trust Him. He knows what is the future for not only me but my family.

Have a very blessed Saturday.

Shanell

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A Glimmer of Hope and Grace

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With this being the first time writing about the Daily Prompt, I wanted to make sure it came from my heart.

God’s unwavering grace has been glimmering all around me, and it wasn’t until December I started to notice that this glimmer of light was always there, especially during the darkness that tainted my way of thinking and viewing my life.

I am only 28 years old and my life has been nothing compared to what I had planned for myself. I never planned on becoming ill, let alone be set with chronic invisible illnesses to the point of disability. The plan was to complete college and find my dream career, or so I thought.

10 years ago when my journey of chronic illness began, I never would’ve pictured myself where I am today. The trials are hard, and my faith remained broken, until I cried out unto God when my flesh could no longer take the pain. All this time, there was a glimmer of His Grace out there, but my eyes were to busy focusing on what can’t be changed or fix instead of what I can do with His help. I love the story of Peter when he saw Jesus walking on water. I can relate to this account with my own personal experiences on more than one occasion.

Now in the fourth watch of the night Jesus went to them, walking on the sea. And when the disciples saw Him walking on the sea, they were troubled, saying, “It is a ghost!” And they cried out for fear. But immediately Jesus spoke to them, saying, “Be of good cheer! It is I; do not be afraid.” And Peter answered Him and said, “Lord, if it is You, command me to come to You on the water.” So He said, “Come.” And when Peter had come down out of the boat, he walked on the water to go to Jesus. But when he saw that the wind was boisterous, he was afraid; and beginning to sink he cried out, saying, “Lord, save me!” And immediately Jesus stretched out His hand and caught him, and said to him, “O you of little faith, why did you doubt?” And when they got into the boat, the wind ceased. -Matthew 14: 26-33 NKJV

Jesus was the glimmer that Peter could see, but the second he took his eyes off of it, and focused on the wind (the darkness), he began to sink.

I am still in my storm, but instead of focusing on the strong winds and giant pounding waves of pain, my focus is set on the glimmer of light, Jesus Christ. I have found new hobbies that I greatly enjoy such as reading and writing, and am currently taking courses to broaden my knowledge further and to become a much better writer, and very possibly make a career out of it; whatever God has planned for me. I am no longer pursuing college, but focusing on God, my family and being a Proverbs 31 woman. And here’s the thing. The closer you get to Him, that glimmer becomes a shimmer, and soon a beautiful glistening glow that you give off yourself.

Focus on the glimmer of hope and His grace that is ahead, and you will not sink.

via Daily Prompt: Glimmer