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Another Rollercoaster

Today I had my follow-up for my spine injections. I had my second injection just about three weeks ago and the relief was none. My doctor is now sending me to a neurosurgeon for an opinion as to what the next path of treatment will be.

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Yay! (😒) Just another specialist to add to my crazy list of doctors who are part of my chronic illness journey. Friday I see the general surgeon for the lipomas on my back, so that should be interesting. Meanwhile while waiting for my doctor to come into my exam room, my gynecologist who specializes in over half of my invisible illness gave me the news that I have a bladder infection inside of my bladder that’s diseased with interstitial cystitis, which explains why I am having horrible pain around my pelvic area. Oh! And I am still waiting on rheumatology.

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Truth be told, I’m scared. My pain is an eight and goes up to a ten at night. All of my body had been in some sort of flare for five days now. My degenerative disc disease and bluffed discs at L4/S1 are is creating my left leg to go dead and pain in my left hip, that is flaring up my pelvic floor myalgia, the bladder is flared from the infection, and all of those flared up my fibromyalgia. Yesterday I slept all day and couldn’t even leave my bed. So yeah, I’m all sorts of flares! img_3201

Life isn’t easy. The trials we face are of all different sorts which teach us lessons as we go through the journey. When my journey all started ten years ago and they kept telling me that I needed to see multiple specialists, I would immediately go into a panic attack, but today I didn’t. Today was different and there was just one reason why: my relationship with God. Plus the fact my husband is with me, that always helps. img_3239

The closer I have become to God the easier my life has become, but that doesn’t just come freely. It’s a relationship, a continuous and faithful one at that. That’s what gives me this freedom. As relationships with others consist of mutual love and respect, it is the same with our relationship with God. If we expect something from God yet don’t give him what He has clearly written in God’s Word (trust, faith in Him, the list goes on), that’s not truly a relationship with Him. Do you constantly ask your friends or spouse to do something and when they ask of something of you, you completely ignore it? Is that a relationship? Nope.

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Because I have been listening to Gods Word and trusting what it says and Him in general, I have been able to get through my trials and this journey much better. It has also opened many doors for me and our family in ways I can’t even imagine. Sure, I’m being sent to yet another specialist and am not healed or even close to it, but I trust His plan because He is the maker of me and my future. I have no right to intervene with our maker, and He knows what’s best for me. I used to fight and try to solve issues by my own ways, and it would just cause me further pain, both emotionally and physically. But once I gave my trust unto God, I have peace because when I pray, and I mean truly pray and have a full conversation with God, and after learning how to discern His voice, I know everything will be ok and He is using these trials to help others and to show me where He wants to use me in this world.

One learns the deepest meaning of faith during the biggest trials of their lives. Sure, this is going to be a new and crazy rollercoaster ride because of the new specialists being added, but I’m ready. I am chronically faithful and forever will be because my future has already been written and He is showing me a little at a time.

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Welcome to my life of Chronic Illness

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It’s been difficult for me to write recently. Fibro fog has been attacking me the last week while the rain and snow continues to come down. But, God called me to share my story, share my thoughts and share His word with those who feel how I feel many times. Lonely.

I have been fighting chronic and invisible illnesses for a while now. It all started with endometriosis 10 years ago, and today I have now added fibromyalgia, pelvic floor dysfunction, interstitial cystitis, degenerative back disease, chronic and atypical migraines, alone with all the emotional and mental illness that comes with the rest of my medical problems, and I am not afraid to share: PTSD with dissociative traits (thanks to childhood abuse, my daughter’s medical and abusive from a ex), Chronic Depression and Severe Anxiety. I am actually still battling endometriosis. That’s the facts, I am not ashamed and welcome to my life. I am sure there are many others who are trying to get through life like me, and I am here to tell you one thing:  you are not alone, even though you may feel like it.img_1610

The last 2 years is when everything came to knowledge of my doctors and when my body really started to get bad, but of course it wasn’t without a fight. Invisible Chronic Illnesses many doctors and practitioners don’t believe are real and then send the patient off to a psychologist or counselor. THAT IS NOT OKAY, and you should never give up! I fight on a daily basis to put a smile on my face as I send my children off to school even though the pain is excruciating. I have had to cancel multiple times with people, business functions (can’t even work my business because of my health), even church functions, and many have given up on even calling, texting or coming to see me.

Now, I am not saying this for pity, I am far from that. This is my life and I am okay with it because I trust in Jesus and His plan for me. Yes, I hurt all day, every day because I choose not to take certain medications that make me feel worse. I have turned to God more than ever. I grew up in church, even though my family atmosphere was far from a Christian household, but I held onto my faith. My oldest daughter was born with a Congenital Diaphragmatic Hernia and her medical journey was stressful, and caused lots of stress between me and her father. The abuse from him continued, he refused to believe I truly had my medical conditions and were never there for my procedures, and I literally lost it. Yup, I have had my share of emotional breakdowns, but this was by far the worse. I gave up, went down a dark hole of depression and lost my faith, until I met my husband. Now, we have the family that I always dreamed of, and our blended family is beautiful. I had given up the idea of having another child due to my infertility from the endometriosis, but God gave me my younger daughter Ashley when I met my husband.

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The last 4 years my husband Rick has been a saint, and just in the last year, we both have found our faith together and our family has seen the power of Jesus work in our lives. He is always there for me, he goes with me to my appointments and asks his own questions. When I am stuck in bed, he cares for me. God truly sent me him for a reason, and I love him so much.

Due to the fact that Adam and Eve sinned, many people live with illness. What I find the hardest is that us with chronic illnesses that are invisible are told we are faking or over reacting for attention. If they could only step into my shoes and feel the pain and battles we face every day. But I will not allow my illness to keep me from serving the Lord in our youth ministry.

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So I will end with this. Don’t give up, I know its hard and many times you feel like the world is going to end. Give it to God. Maybe you aren’t a Christian and don’t understand how He can help us. I lost my faith and my life became worse, my physical and mental health became worse from stress, but then Jesus made it clear that He was calling me back to Him and since, I have been able to make it through the battles. It’s still hard, i’m not going to lie about that, but I know that Jesus is my protector, and when He comes back to save his church, there will be no more sickness or pain.

2 Corinthians 4:16-18 “Therefore we do not lose heart. Even though our outward man is perishing, yet the inward man is being renewed day by day. For our light affliction, which is but for a moment, is working or us a far more exceeding and eternal weight of glory, while we do not look at the things which are seen, but at the things which are not seen. For things which are seen are temporary, but the things which are not seen are eternal.”

Love and God Bless!

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I Made It Through

Today marked my 6th pelvic floor injection. I have suffered from pelvic floor myalgia for at least 3 years but believe more. Physical therapy didn’t do anything so the injections were the only option. And yup, that is the needle used (ouch! What is that, a foot long?)

Once a week, multiple injections and excruciating pain, but I made it through, but this isn’t the end of the journey. Not only do I suffer from pelvic floor dysfunction, I have been battling endometriosis for 10 years and Interstitial Cystitis. So I have a month and if the pain continues, they are going back in laparoscopically to check for endometriosis and to give me a hydrodistention for my IC. That would make it my 7th endo procedure and my 4th hydrodistention. But I must remember Proverbs 17:22 that states “A merry heart does good, like medicine but a broken spirit dries the bones.”

God has a plan for me. Yes He has the power to heal me, but everything that is and is to come is all for God, and I am trusting Him through it all. I will continue to be chronically faithful to Him and His plan for me.